If it ain’t broken….

So there is now a non interferon based treatment for Hepatitis C, approved by the FDA but not as yet approved by the National Health Service.

This delay being mainly due to financial rather than medical considerations

In many ways the waiting for clearance of the drug’s usage in England is of benefit to me, as it gives me time to think about whether I want to undergo another course of treatment to attempt to clear my Hep C.

I have had the illness many years now, and while there have been times that it has caused me to become very ill, it was nowhere near as sick as I became when I underwent the peg interferon treatment. This combination therapy, aside from not being successful in clearing the virus, drove me mad and created knock on effects that took years to recover from.

Friends and acquaintances that contracted the illness at the same time and had  the same genotype, have died or become very ill. However I do need to bear in mind that they were male (which seems to make a difference in how severely the disease manifests) and some still were drinking or taking drugs, both of which I long ago stopped doing.

As I was one of the first wave of people diagnosed with the virus, and one of many that are interferon intolerant, there is perhaps a greater interest from the medical profession in how it manifests in me. Also any drug, even if thoroughly tested, will not have been tested to the extent of knowing its effects in ten or twenty years.

What I need to decide is whether it is necessary to sacrifice a portion of my life to ingest chemicals with a degree of unknown effect, to treat an illness that is presently not problematic.

There is a strange balance in dealing with serious illness that falls between between denial and melodramatic over reaction; in the midpoint lays right action.

 

 

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About charlottejane2002

Author of 'P is for Prostitution', 'The Bloody Sacrifice' and co-editor of 'A Contemporary Western Book of the Dead' which are all published by Mandrake of Oxford. Italian publisher Roberto Migliussi has recently released 'The Sky is a Gateway, Not a Ceiling', a book of Charlotte's collected essays printed alongside images of his own art work. Charlotte is also an artist who creates spiritually directed art works from road kill and found objects. She has had her written work printed in anthologies and various magazines and on line publications and has given presentations at many events and institutions including Edinburgh University and Brooklyn's 'Museum of Morbid Anatomy'. Her art work has been exhibited widely including at London's Chelsea Gallery and The Bath Royal Literary and Scientific Institute, and is soon to be shown in New York.
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2 Responses to If it ain’t broken….

  1. An unpleasant problem to have to deal with. Makes my small health issues fade by comparison.

    • I believe that our health issues are on par Russell in the way they require constant monitoring and commitment to living in a certain way, otherwise they become problematic and potentially life threatening. Hep C is more of an unknown quantity though, which creates a nasty ‘X’ factor, that is difficult to deal with in a balanced way and god knows balance has never come easily to me!

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